| Location | Leeds,halton Moor |
| Age | 2 years |
| Cause of Death | Rare Heart Condition |
| Date of Birth | 2/2005 |
| Date of Death | 12/2007 |
| Visitors | 4,885 since 06/04/2008 |
| Creator |
Pauly was born on 6th Febuary 2005 at 6:39am weighing 3lb 3oz.
Pauly fell asleep on 27th December 2007,at 10:30am amongst his loving family.
When I think of Pauly and who he was, I only think of joy. Cheekyness,boisterous, naughty, loveable
and a fighter. A little boy with a big miracle and although it pains me to say I think T.S. was part
of that miracle. He had a way of making even the most miserable of times happy and bearable. The way
he never forgot anyone, even the woman who stacks the shelfs at Asda. The way he nipped and kicked
his big and little sister, and the way he asked if I was alright and where his sisters were, when
he'd just woke up in intensive care.Most of all Pauly had a wicked laugh and I've never heard a room
fill with such joy since we lost our boy.When I think of Pauly only reaching 2yrs 10mths, I do feel
sad but I do try to remember that it was better than a day.
ITS BETTER TO HAVE LOVED AND LOST THAN TO HAVE NEVER LOVED AT ALL!
Thank-you Pauly for fighting so long.
pauls story follows this in tributes Title; The Timothy in Pauly.
IF ANY ONE WOULD LIKE TO LEAVE A CANDEL OR PIC PLEASE FEEL FREE
WE WOULD BE SO GREATFULL.
THANK-YOU SO MUCH TO ALL WHO LIGHT CANDELS FOR PAULY THEY MEAN THE WORLD TO US.XXX
This is your story darling in mummys words.(well a much shorter version anyway).
When I was 27 weeks pregnant with you the doctors discovered you had a poorly heart. 2;1 av heart
block. So your heart was beating too slow.
The docs said when you was born you would need to have a pacemaker, that would help your heart
function better.
When you was born at just 30 weeks gestation weighing 3lb 3oz, the real fight began.
Due to you been early you was very poorly and you needed special equipment to keep you alive.
A few hours after you was born it became obvious that there was other stuff wrong with you.
You had syndactly (joined) fingers and toes, and a serious heart condition called long QT syndrome.
This meant you was at continuess risk of cardiac arrest.
The 2 symptoms of LQTs and syndactly got the docs thinking you cud have something else.
So your blood, mine and your dads was sent to America and you was very sadly diagnosed with. TIMOTHY
SYNDROME.
A rare and deadly syndrome that had only affected 18 children worldwide.
Sadly the life expectency for T.S. kids is very poor. Most of them have sadly died in there first
year of life.
Timothy syndrome means a whole wide range of things that you cud suffer.
Back then the docs weren't hopeful, not only was you fighting prematurely but you also had a life
threatning disorder.
But your Pauly and as we cum to realise you like to prove everyone wrong, and so we thought, along
with half the estate praying for you.Even people we didnt know.
Slowly you became stronger and got bigger.
The docs said that because of the massive risk of cardiac arrest that you should go home with a
de-fib(a shocking machine) that would hopefully restart you heart.
This was tough me and your daddy had to train in life support advanced,the truth is most docs dont
even need de-fib training.
But we loved you and wanted you home.
When you finally did cum home 4 and a half mths later,you had a de-fib,E.C.G. machine,oxygen and a
feeding tube.
Hard work you, it was like ward 69 at our house, with doctor mummy and daddy.
Over the nxt two years we got you strong you had your hand op that went well.
Everyday we just prayed you would live another.
You was in and out of hospital alot with you chest and other stuff.
You became a little boy, and I think we all took for granted that you were strong.
When you reached 2yrs it was like Timothy had woke up.
The doctors did a recording of you heart and found that for 6 seconds your heart was in a life
threatening rhythm.
It was decided that on 15th june, you needed to be fitted with a pacemaker so they cud increase your
medicine.
During that op you heart became sensitive and you needed shocking more than 10 times.
But again you fought back.
The nxt day you was carrying on saying 'playroom now', 'ECG off now'!
Then the nxt day you started having fits, linked with T.S.
you had a couple then came the hypos(hypoglicimea).
They were really scary as you dropped you sugar levals fast and dangrously low.
Yet again you bounced back, and after 7 weeks we took you home again.
You loved the ward and the staff and I always said you wuld be back soon and you always were.
Hannah house were you went for respite taught us alot. Mostly that you wouldnt break at the
slightest knock.
Thats where you were when it all began on x-mas eve.
Your nurse rung us to say you had needed your de-fib and it had shocked you.
Panic thats all i can remember.
When you arrived at hospital you were fitting and it was so scary.
They finally sedated you and put you on the breathing machine.
They took you to intensive care.
You was stable overnite and on x-mas day you woke up.
The first thing you asked me was where Decie and Lana was(your big and little sisters.)Then because
I was crying with happiness that you was awake you asked if I was alright.
Which made me cry more, you had just been threw all that and you was still asking about other
people.
The nxt day (boxing day) me and Daddy brought you sum of your small presents. and you was took up to
the ward.Uncle Lee brought your Leeds kit, which you loved.
Then uncle Darren and uncle Wayne came, with auntie Della and antie Kelly,they played with you and
feed you beans and sausages.
You loved your pressies mostly the simpsons ones.
We watched sum episodes with you and you fell asleep.
Daddy stayed with you like he always did.Yours and his time at bed.
The nxt morning we rung up to ward to see how you were.You was sleeping so we nipped home to collect
the rest of your presents.
By the time i got home the phone was ringing.
They asked us to cum back as you had got really poorly.
Thats when you left us.27th december, the first non xmas day.
The docs said that your heart had gone into cardiac arrest and had starved you of oxygen.
So we let them stop trying, and I must admit thats the hardest thing we ever had to do for you.
The rest is a blur.
Carrying on without you is only just bearable, I have to for your sisters and daddy.
Yet I do know theres so much to be greatful for.
The fact that you lived as long. Had you of gone when you were neo-natal we wuld not of shared your
first word,steps and laugh.
The fact you got to teach lana well shes a little git.
The holiday to Cleethorpes, where you slept in a big boys bed for the first time, and touched the
sand.
The thing I wished more than anything I've ever wished for,was to hear you one last time,saying
mummy.
And you did, you woke up for a last christmas, you opened sum presents and you told me and daddy
'love you' one last time.
I'm so thankful of you Pauly, you have brightened my life and I'm so proud to say I'm your MUM.
You will never be forgotten and I will continue to tell your courageous story.
THANK-YOU DARLING.!
Miss you millions love you
more.xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx!
FROM THE BOTTOM OF MY HEART XX
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♥.·°.°·.♥.· ° ♥.·°.°·.♥.· °♥.·°.°·.♥.·° ♥.·°.°·.♥.· °
Friends are like flowers
Each unique in their own way
Put them all together
What a wonderful bouquet
Some are really brilliant
Full of light sharp and clear
While others are more subdued
To both you can adhere
You are a flower in my garden
That makes up my bouquet
My friends you all make
A very impressive display
Love Always ~~cher~~
ALL MY LOVE XX
♥.·°.°·.♥.· ° ♥.·°.°·.♥.· °♥.·°.°·.♥.·° ♥.·°.°·.♥.· °
Should you go first & I remain,
to walk the road alone,
I'll live in memories garden dear,
with happy days we've known.
In spring I'll wait for roses red,
when faded the lilacs blue.
In early fall when brown leaves fall,
I'll catch a glimpse of you.
Should you go first & I remain,
for battles to be fought,
Each thing you've touched along the way
will be a hallowed spot.
I'll hear your voice,
I'll see your smile,
though blindly I may grope,
The memory of your helping hand
will buoy me on with hope.
Should you go first & I remain,
one thing I'll have you do:
Walk slowly down that long long path,
for soon I'll follow you.
I want to know each step you take,
so I may take the same.
For someday down that lonely road,
you'll hear me call your name.
♥.·°.°·.♥.· ° ♥.·°.°·.♥.· °♥.·°.°·.♥.·° ♥.·°.°·.♥.· °
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SENDING YOU ALL MY LOVE FROM CHER XX
A BOY IN A MILLION XXX
♥.·°.°·. ♥.·°.°·.♥.·°.. ♥°·.♥.·°.°♥.� �� �� �.°·. ♥.·°.°·.♥.·°.. ♥°·.♥.·°.°
You have always been a friend to me,
From the first day that we met,
You are someone very special,
That I never will forget.
You have a way about you,
That always makes me smile,
You talk to everybody,
With confidence and style.
Friendship is a very special thing,
Like a flower it must grow,
To show it's natural beauty,
That's inside our very soul.
You are a very heartfelt person,
You care about everyone,
You know when to stop and listen,
You know when to laugh and have fun.
So when life seems over whelming,
And you feel like your burdens won't end,
I will be there to comfort you,
Because you are my special friend.
♥.·°.°·. ♥.·°.°·.♥.·°.. ♥°·.♥.·°.°♥.� �� �� �.°·. ♥.·°.°·.♥.·°.. ♥°·.♥.·°.
A BOY IN A MILLION XXX
xx MISSING ~ YOU xx
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~ Our hearts are truly broken ~
~ Our tears they fall like rain ~
~ We wish we could see you one more time ~
~ To ease this awful pain ~
~ We know that you're in heaven ~
~ And in heaven you shall remain ~
~ A very special angel ~
~ Until we meet again ~ xXx·.♥.·°.°·.♥. xXx
·:*:· ·:*:· ·:*:· ·:*:· ·:*:· ·:*:· ·:*:· ·:*:· ·:*:· ·:*:· ·:*:·
A BOY IN A MILLION XXX
You are remembered and you are loved,
Your memory will live on.
We know how much you loved us
As much as we loved you,
And each time that we think of you
We know your missing us too.
But when tomorrow start's without you
We will try to understand,
That an Angel came & called your name
And took you by the hand.
She said your place was ready
In Heaven far above,
And that you'd have to leave behind
The ones you dearly loved.
The moment God took you away
The tear's fell from our eye's,
For all our live's we never thought
That you would have to die.
You had so much to live for
And so much more to do,
It seemed almost impossible
That you were leaving us too.
We thought of all our yesterday's
The good time's & the bad,
We thought of all the love we shared
And all the fun we had,
If we could go back to yesterday
Just even for a while,
We'd hold you tight & kiss you
And see your lovely smile..
If we could bring you back again
For one more hour or day
We'd express all our unspoken love
We'd have countless things to say
If we could bring you back again
We'd say we treasure you
And that your presence in our lives
Ment more than we ever knew
If we could bring you back again
To tell you that we should
You'd know how much we miss you now
And if we could we would.
Poem
Not gone from Daddy's memory
Not gone from Mummy's love
But gone to shine with Jesus
In his beautiful home above
All my love,kisses n hugs darling
xxxxxxxxxxxxxxxxxxxxxxxxxx
Hi Pauly i always see your garden when i come to visit my friend Kyle every Friday. It is clear what a popular and loved little boy you were.
You are such a gorgeous little boy - you look full of mischief on your photo!!!
i see you like the simpsons as much as my little boy does!
i will come and say hello when i next go and see Kyle
sweet dreams little angel xxx
A BOY IN A MILLION XXX
(¯`v´¯)
`✿.¸.✿´
¸.✿´¸.✿´¨) ¸.✿¨✿)
(¸.✿´ (¸.✿´ .✿´ ¸¸.✿¨¯`✿
Each morning when we awake
we know that you are gone,
and know one knows the heartache
as we try to carry on.
Our hearts still ache with sadness
and many tears still flow,
what it meant to loose you
no one will ever know.
Our thoughts are always with you
your place no one can fill,
in life we loved you dearly,
in death we love you still.
There will always be a heartache
and often a silent tear,
but always a precious memory
of the days when you were here.
(¯`v´¯)
`✿.¸.✿´
¸.✿´¸.✿´¨) ¸.✿¨✿)
(¸.✿´ (¸.✿´ .✿´ ¸¸.✿¨¯`✿
what a sweet little man he is xxx
THINKING OF YOU ALWAYS XXX
¯`v´¯)
`✿.¸.✿´
¸.✿´¸.✿´¨) ¸.✿¨✿)
(¸.✿´ (¸.✿´ .✿´ ¸¸.✿¨¯`✿
Each morning when we awake
we know that you are gone,
and know one knows the heartache
as we try to carry on.
Our hearts still ache with sadness
and many tears still flow,
what it meant to loose you
no one will ever know.
Our thoughts are always with you
your place no one can fill,
in life we loved you dearly,
in death we love you still.
There will always be a heartache
and often a silent tear,
but always a precious memory
of the days when you were here.
(¯`v´¯)
`✿.¸.✿´
¸.✿´¸.✿´¨) ¸.✿¨✿)
(¸.✿´ (¸.✿´ .✿´ ¸¸.✿¨¯`✿
SORRY AM GOING ON HOLIDAY,NO MORE CANDLES UNTIL 2nd
AUG BUT I WILL AWAYS BE THINKING OF YOU ALL. LOVE N MISS YOU CHER XXX
missing u
hi little angel just letting u know were still thinking of u soooooooo much and we all miss u like mad love u baby boy xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxkissies just 4 u with lovexxxxxxxxxxxxxxx
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxlove u soooooooo muchxxxxxxxx
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