| Location | Leeds,halton Moor |
| Age | 2 years |
| Cause of Death | Rare Heart Condition |
| Date of Birth | 2/2005 |
| Date of Death | 12/2007 |
| Visitors | 4,883 since 06/04/2008 |
| Creator |
Pauly was born on 6th Febuary 2005 at 6:39am weighing 3lb 3oz.
Pauly fell asleep on 27th December 2007,at 10:30am amongst his loving family.
When I think of Pauly and who he was, I only think of joy. Cheekyness,boisterous, naughty, loveable
and a fighter. A little boy with a big miracle and although it pains me to say I think T.S. was part
of that miracle. He had a way of making even the most miserable of times happy and bearable. The way
he never forgot anyone, even the woman who stacks the shelfs at Asda. The way he nipped and kicked
his big and little sister, and the way he asked if I was alright and where his sisters were, when
he'd just woke up in intensive care.Most of all Pauly had a wicked laugh and I've never heard a room
fill with such joy since we lost our boy.When I think of Pauly only reaching 2yrs 10mths, I do feel
sad but I do try to remember that it was better than a day.
ITS BETTER TO HAVE LOVED AND LOST THAN TO HAVE NEVER LOVED AT ALL!
Thank-you Pauly for fighting so long.
pauls story follows this in tributes Title; The Timothy in Pauly.
IF ANY ONE WOULD LIKE TO LEAVE A CANDEL OR PIC PLEASE FEEL FREE
WE WOULD BE SO GREATFULL.
THANK-YOU SO MUCH TO ALL WHO LIGHT CANDELS FOR PAULY THEY MEAN THE WORLD TO US.XXX
This is your story darling in mummys words.(well a much shorter version anyway).
When I was 27 weeks pregnant with you the doctors discovered you had a poorly heart. 2;1 av heart
block. So your heart was beating too slow.
The docs said when you was born you would need to have a pacemaker, that would help your heart
function better.
When you was born at just 30 weeks gestation weighing 3lb 3oz, the real fight began.
Due to you been early you was very poorly and you needed special equipment to keep you alive.
A few hours after you was born it became obvious that there was other stuff wrong with you.
You had syndactly (joined) fingers and toes, and a serious heart condition called long QT syndrome.
This meant you was at continuess risk of cardiac arrest.
The 2 symptoms of LQTs and syndactly got the docs thinking you cud have something else.
So your blood, mine and your dads was sent to America and you was very sadly diagnosed with. TIMOTHY
SYNDROME.
A rare and deadly syndrome that had only affected 18 children worldwide.
Sadly the life expectency for T.S. kids is very poor. Most of them have sadly died in there first
year of life.
Timothy syndrome means a whole wide range of things that you cud suffer.
Back then the docs weren't hopeful, not only was you fighting prematurely but you also had a life
threatning disorder.
But your Pauly and as we cum to realise you like to prove everyone wrong, and so we thought, along
with half the estate praying for you.Even people we didnt know.
Slowly you became stronger and got bigger.
The docs said that because of the massive risk of cardiac arrest that you should go home with a
de-fib(a shocking machine) that would hopefully restart you heart.
This was tough me and your daddy had to train in life support advanced,the truth is most docs dont
even need de-fib training.
But we loved you and wanted you home.
When you finally did cum home 4 and a half mths later,you had a de-fib,E.C.G. machine,oxygen and a
feeding tube.
Hard work you, it was like ward 69 at our house, with doctor mummy and daddy.
Over the nxt two years we got you strong you had your hand op that went well.
Everyday we just prayed you would live another.
You was in and out of hospital alot with you chest and other stuff.
You became a little boy, and I think we all took for granted that you were strong.
When you reached 2yrs it was like Timothy had woke up.
The doctors did a recording of you heart and found that for 6 seconds your heart was in a life
threatening rhythm.
It was decided that on 15th june, you needed to be fitted with a pacemaker so they cud increase your
medicine.
During that op you heart became sensitive and you needed shocking more than 10 times.
But again you fought back.
The nxt day you was carrying on saying 'playroom now', 'ECG off now'!
Then the nxt day you started having fits, linked with T.S.
you had a couple then came the hypos(hypoglicimea).
They were really scary as you dropped you sugar levals fast and dangrously low.
Yet again you bounced back, and after 7 weeks we took you home again.
You loved the ward and the staff and I always said you wuld be back soon and you always were.
Hannah house were you went for respite taught us alot. Mostly that you wouldnt break at the
slightest knock.
Thats where you were when it all began on x-mas eve.
Your nurse rung us to say you had needed your de-fib and it had shocked you.
Panic thats all i can remember.
When you arrived at hospital you were fitting and it was so scary.
They finally sedated you and put you on the breathing machine.
They took you to intensive care.
You was stable overnite and on x-mas day you woke up.
The first thing you asked me was where Decie and Lana was(your big and little sisters.)Then because
I was crying with happiness that you was awake you asked if I was alright.
Which made me cry more, you had just been threw all that and you was still asking about other
people.
The nxt day (boxing day) me and Daddy brought you sum of your small presents. and you was took up to
the ward.Uncle Lee brought your Leeds kit, which you loved.
Then uncle Darren and uncle Wayne came, with auntie Della and antie Kelly,they played with you and
feed you beans and sausages.
You loved your pressies mostly the simpsons ones.
We watched sum episodes with you and you fell asleep.
Daddy stayed with you like he always did.Yours and his time at bed.
The nxt morning we rung up to ward to see how you were.You was sleeping so we nipped home to collect
the rest of your presents.
By the time i got home the phone was ringing.
They asked us to cum back as you had got really poorly.
Thats when you left us.27th december, the first non xmas day.
The docs said that your heart had gone into cardiac arrest and had starved you of oxygen.
So we let them stop trying, and I must admit thats the hardest thing we ever had to do for you.
The rest is a blur.
Carrying on without you is only just bearable, I have to for your sisters and daddy.
Yet I do know theres so much to be greatful for.
The fact that you lived as long. Had you of gone when you were neo-natal we wuld not of shared your
first word,steps and laugh.
The fact you got to teach lana well shes a little git.
The holiday to Cleethorpes, where you slept in a big boys bed for the first time, and touched the
sand.
The thing I wished more than anything I've ever wished for,was to hear you one last time,saying
mummy.
And you did, you woke up for a last christmas, you opened sum presents and you told me and daddy
'love you' one last time.
I'm so thankful of you Pauly, you have brightened my life and I'm so proud to say I'm your MUM.
You will never be forgotten and I will continue to tell your courageous story.
THANK-YOU DARLING.!
Miss you millions love you
more.xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx!
missing u baby boy
love u soo much
we are moving soooon and u will always be in my heart
love u always
xxxxxxtonixxxx
LOVE YOU XX
Never think you are on your own
I`d never let you walk alone
When you`re down and want to cry
Let it out, let your tears run dry,
I watch and guide you everyday
So that you can find your way
And when you`re down and in despair
Just call my name and I`ll be there,
Right by your side through good and bad
But you need never feel sad,
Until it`s time for your journey home
Just remember you`re not on your own
We`ll meet again sometime soon
And we`ll be together, like the stars and moon
~~~ALL MY LOVE TO YOU N YOUR FAMILY ~~~
keeping you in my heart xx
Dear Lord,
Every single evening
As I'm lying here in bed,
This tiny little Prayer
Keeps running through my head:
God bless all your family
Wherever they may be,
Keep them warm and safe from harm
For they're so close to me.
And God, there is one more thing
I wish that you could do;
Hope you don't mind me asking,
Please bless my computer too.
Now I know that it's unusual
To Bless a friendboard
But listen just a second
While I explain it to you, Lord.
You see, that little metal box
Holds more than odds and ends;
Inside those small compartments
Rest so many of my friends
I know so much about them
By the kindness that they give,
And this little scrap of metal
Takes me in to where they live.
By faith is how I know them
much the same as you.
We share in what life brings us
And from that our friendships grew.
Please take an extra minute
From your duties up above,
To bless those in my address book
That's filled with so much love.
Wherever else this prayer may reach
To each and every friend,
Bless each e-mail inbox
And each person who hits 'send'.
When you update your Heavenly list
On your own Great CD-ROM,
Bless everyone who hears this prayer
Sent up to GOD.com
~~love sent from cher ~~
a blessing for you xx
May the blessing of light be upon you
Light on the outside and light on the inside
With God's sunlight shining on you,
May your heart glow with warmth like a turf fire
That welcomes friends and strangers alike.
May the light of the Lord shine from your eyes
like a candle in the window,
welcoming the weary traveler.
May the blessing of God's soft rain be on you
Falling gently on your head
refreshing your soul with the sweetness
of little flowers newly blooming
May the strength of the winds of heaven bless you,
carrying the rain to wash your spirit clean
sparkling after, in the sunlight
May the blessing of God's earth be on you
and as you walk the roads, may you always
have a kind word for those you meet.
May you understand the strength and power
of God in a thunderstorm in winter,
the quiet beauty of creation and the calm of a summer sunset.
And may you come to realize that insignificant
as you may seem in this great universe,
you are an important part of God's plan
May He watch over you and keep you safe from harm.
AMEN !xxx
LIGHTING YOU A CANDLE OF LOVE XXX
~*~*~*~*~*~*~*~*~*~*~
God saw you getting tired,
A cure was not meant to be,
So he put his arms around you
And whispered come with me.
With broken hearts we loved you,
As we heard you'd passed away,
Although we loved you deeply
We could not make you stay.
Your golden heart stopped beating,
Hard working hands at rest,
God broke our hearts to prove to us
He only takes the best!
It broke our hearts to lose you,
But you did not go alone,
A part of us went with you
The day God took you home.
A million times we'll miss you,
A million times we'll cry,
If love could have saved you
You never would have died
No farewells were spoken,
No time to say goodbye,
You were gone before we knew it
And only God knows why.
If tears could build a stairway,
And heartaches make a lane,
We'd walk the path to heaven
And bring you home again
~*~*~*~*~*~*~*~*~*~* ~*~
thinking of you always love cher.
~*~*~*~*~*~*~*~*~*~* ~*~
for you with all my love from cher xx
If my tears could bring you back
theres nothing else i'd ever ask
with tears your memory I now clutch
what i'd give to feel your touch
My vision the tears would blur
they let me see you as you were
they'd build a stairway straight to thee
bringing you back here to me
Down my face the tears would roll
to bring you back for me to hold
not a day would pass you'd be alone
if my tears could bring you home
Down from heaven up above
i'd wrap you in my love
tears falling unable to talk
down the stairs to meet me you'd walk
From heaven god would send you here
to end my sorrow and dry my tears
if only my tears could bring you home
they'd be forever etched in stone
~~all my love to you n your family love cher~~
A BABY BOY IN A MILLION XXX
I have not turned my back on you,
so there is no need to cry.
I'm watching you from heaven,
just beyond the morning sky.
I've seen you almost fall apart,
when you could barely stand.
I asked the Lord to comfort you,
and watched him take your hand.
He told me you are in more pain,
then I could ever be.
He wiped his eyes and swallowed hard,
then gave your hand to me.
Although you may not feel my touch,
or see me by your side.
I've whispered that I love you,
while I wiped each tear you cried.
So please try not to ache for me,
we'll meet again one day,
beyond the dark and stormy sky,
a Rainbow lights the way.
~~all my love to you from cher god bless xx~~
A BOY IN A MILLION XXX
Do you hear me when I speak to you?
Can you feel my love so deep?
Have you transcended to another world...
Where once again we'll meet?
Do you see my tears continue
As I live on without you here?
Is it you that comes to visit...
When I feel you are near?
Do you see I'm lost without you?
Can you tell how much I've changed?
I live my life as if I'm lying
Was this all just prearranged?
Do you know how much I need you?
Can you come take me away?
For living on without you
Is so very difficult each day.
Have others just forgotten?
Or do they just ignore...
That grief lives on forever
Deep down within my core
When my time on Earth is over
And I have worked my whole life through
Will I travel up to heaven...
To finally be with you?
~~sending you all my love from cher xx~~
~~~MY VERY SPECIAL BOY ~~~
You're a friend
For all times
If you planted hope today
In any hopeless heart
If someone's burden was lighter
Because you did your part
If you made someone laugh out loud
And kept their tears at bay
Then today has been
For you my friend
A very special day
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Love AlwayS CHER XXX
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