| Location | Leeds,halton Moor |
| Age | 2 years |
| Cause of Death | Rare Heart Condition |
| Date of Birth | 2/2005 |
| Date of Death | 12/2007 |
| Visitors | 4,885 since 06/04/2008 |
| Creator |
Pauly was born on 6th Febuary 2005 at 6:39am weighing 3lb 3oz.
Pauly fell asleep on 27th December 2007,at 10:30am amongst his loving family.
When I think of Pauly and who he was, I only think of joy. Cheekyness,boisterous, naughty, loveable
and a fighter. A little boy with a big miracle and although it pains me to say I think T.S. was part
of that miracle. He had a way of making even the most miserable of times happy and bearable. The way
he never forgot anyone, even the woman who stacks the shelfs at Asda. The way he nipped and kicked
his big and little sister, and the way he asked if I was alright and where his sisters were, when
he'd just woke up in intensive care.Most of all Pauly had a wicked laugh and I've never heard a room
fill with such joy since we lost our boy.When I think of Pauly only reaching 2yrs 10mths, I do feel
sad but I do try to remember that it was better than a day.
ITS BETTER TO HAVE LOVED AND LOST THAN TO HAVE NEVER LOVED AT ALL!
Thank-you Pauly for fighting so long.
pauls story follows this in tributes Title; The Timothy in Pauly.
IF ANY ONE WOULD LIKE TO LEAVE A CANDEL OR PIC PLEASE FEEL FREE
WE WOULD BE SO GREATFULL.
THANK-YOU SO MUCH TO ALL WHO LIGHT CANDELS FOR PAULY THEY MEAN THE WORLD TO US.XXX
This is your story darling in mummys words.(well a much shorter version anyway).
When I was 27 weeks pregnant with you the doctors discovered you had a poorly heart. 2;1 av heart
block. So your heart was beating too slow.
The docs said when you was born you would need to have a pacemaker, that would help your heart
function better.
When you was born at just 30 weeks gestation weighing 3lb 3oz, the real fight began.
Due to you been early you was very poorly and you needed special equipment to keep you alive.
A few hours after you was born it became obvious that there was other stuff wrong with you.
You had syndactly (joined) fingers and toes, and a serious heart condition called long QT syndrome.
This meant you was at continuess risk of cardiac arrest.
The 2 symptoms of LQTs and syndactly got the docs thinking you cud have something else.
So your blood, mine and your dads was sent to America and you was very sadly diagnosed with. TIMOTHY
SYNDROME.
A rare and deadly syndrome that had only affected 18 children worldwide.
Sadly the life expectency for T.S. kids is very poor. Most of them have sadly died in there first
year of life.
Timothy syndrome means a whole wide range of things that you cud suffer.
Back then the docs weren't hopeful, not only was you fighting prematurely but you also had a life
threatning disorder.
But your Pauly and as we cum to realise you like to prove everyone wrong, and so we thought, along
with half the estate praying for you.Even people we didnt know.
Slowly you became stronger and got bigger.
The docs said that because of the massive risk of cardiac arrest that you should go home with a
de-fib(a shocking machine) that would hopefully restart you heart.
This was tough me and your daddy had to train in life support advanced,the truth is most docs dont
even need de-fib training.
But we loved you and wanted you home.
When you finally did cum home 4 and a half mths later,you had a de-fib,E.C.G. machine,oxygen and a
feeding tube.
Hard work you, it was like ward 69 at our house, with doctor mummy and daddy.
Over the nxt two years we got you strong you had your hand op that went well.
Everyday we just prayed you would live another.
You was in and out of hospital alot with you chest and other stuff.
You became a little boy, and I think we all took for granted that you were strong.
When you reached 2yrs it was like Timothy had woke up.
The doctors did a recording of you heart and found that for 6 seconds your heart was in a life
threatening rhythm.
It was decided that on 15th june, you needed to be fitted with a pacemaker so they cud increase your
medicine.
During that op you heart became sensitive and you needed shocking more than 10 times.
But again you fought back.
The nxt day you was carrying on saying 'playroom now', 'ECG off now'!
Then the nxt day you started having fits, linked with T.S.
you had a couple then came the hypos(hypoglicimea).
They were really scary as you dropped you sugar levals fast and dangrously low.
Yet again you bounced back, and after 7 weeks we took you home again.
You loved the ward and the staff and I always said you wuld be back soon and you always were.
Hannah house were you went for respite taught us alot. Mostly that you wouldnt break at the
slightest knock.
Thats where you were when it all began on x-mas eve.
Your nurse rung us to say you had needed your de-fib and it had shocked you.
Panic thats all i can remember.
When you arrived at hospital you were fitting and it was so scary.
They finally sedated you and put you on the breathing machine.
They took you to intensive care.
You was stable overnite and on x-mas day you woke up.
The first thing you asked me was where Decie and Lana was(your big and little sisters.)Then because
I was crying with happiness that you was awake you asked if I was alright.
Which made me cry more, you had just been threw all that and you was still asking about other
people.
The nxt day (boxing day) me and Daddy brought you sum of your small presents. and you was took up to
the ward.Uncle Lee brought your Leeds kit, which you loved.
Then uncle Darren and uncle Wayne came, with auntie Della and antie Kelly,they played with you and
feed you beans and sausages.
You loved your pressies mostly the simpsons ones.
We watched sum episodes with you and you fell asleep.
Daddy stayed with you like he always did.Yours and his time at bed.
The nxt morning we rung up to ward to see how you were.You was sleeping so we nipped home to collect
the rest of your presents.
By the time i got home the phone was ringing.
They asked us to cum back as you had got really poorly.
Thats when you left us.27th december, the first non xmas day.
The docs said that your heart had gone into cardiac arrest and had starved you of oxygen.
So we let them stop trying, and I must admit thats the hardest thing we ever had to do for you.
The rest is a blur.
Carrying on without you is only just bearable, I have to for your sisters and daddy.
Yet I do know theres so much to be greatful for.
The fact that you lived as long. Had you of gone when you were neo-natal we wuld not of shared your
first word,steps and laugh.
The fact you got to teach lana well shes a little git.
The holiday to Cleethorpes, where you slept in a big boys bed for the first time, and touched the
sand.
The thing I wished more than anything I've ever wished for,was to hear you one last time,saying
mummy.
And you did, you woke up for a last christmas, you opened sum presents and you told me and daddy
'love you' one last time.
I'm so thankful of you Pauly, you have brightened my life and I'm so proud to say I'm your MUM.
You will never be forgotten and I will continue to tell your courageous story.
THANK-YOU DARLING.!
Miss you millions love you
more.xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx!
Light a Candle
Light a candle for those we mourn.
Into a new life they will be born.
Do not look for them at the gravesite.
They are somewhere else radiating their beautiful light.
They have gone to a new world where there is no darkness, no pain.
Their light and essence will always remain.
Light a candle for those who have left this mortal place.
They are free to travel through time and space.
When we think of them, they are near.
When we sit in a beautiful garden. Their voices we hear.
When we listen to a divine symphony,
We close our eyes, their faces we see.
Light a candle for they have not really gone.
With each flickering flame, in your hearts they will always belong.
Gods Garden
God has a special Garden
Somewhere up above the clouds,
it's filled with beautiful flowers
and Angels singing aloud.
Theres candy clouds
and teddy bears and a "choo choo" train of love,
and a tiny precious angel
smiling down...from up above.
Hi Pauly,
just thought i'd write a little something for you, been a while since i wrote a poem...hope you like it little man.
Sleep peacefully in heaven, watch over your mummy.
Godbless darling.
xxx
Have A Good Weekend Everyone
This Tribute Is For Friday Got Busy Day Tomorrow
Right now I'm in a different place
And though we seem apart
I'm closer than I ever was
... I'm there inside your heart
I'm with you when you greet each day
And while the sun shines bright
I'm there to share the sunsets, too
... I'm with you every night
I'm with you when the times are good
To share a laugh or two,
And if a tear should start to fall
... I'll still be there for you
And when that day arrives
That we no longer are apart,
I'll smile and hold you close to me
... Forever
If Roses grow in Heaven,
Lord please pick a bunch for me
Place them in my Loved One’s arms
And tell them they're from me
Tell them I love and miss them
And when they turns to smile
Place a kiss upon their cheeks
And hold them for awhile
Because remembering them is easy,
I do it every day
But there's an ache within my heart
Because I am missing them today...
Although death has separated us physically,
Faith and love have bound us eternally.
Though we cannot see you,
We know you are here.
Though we cannot touch you,
We feel the warmth of your smile,
As we begin a new chapter in our lives.
Today we pause to reflect upon
Those who have shaped our character,
Molded our spirits and touched our hearts.
May the lighting of this tribute be a
Reminder of the memories we have shared,
A representation of the everlasting
Impact you have made upon our lives.
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
Thursday
For Friday
Have A Good Weekend Everyone
This Tribute Is For Friday Busy Tomorrow
You were a gift sent straight from Heaven.
Given to us from God above.
We didn't know how much you would teach us
About the meaning of true love...
For true love sometimes means letting go
Of someone precious and dear.
That is what we were forced to do...
Although we wanted to keep you here!!!
However, this is quite a selfish wish.
One we know we should ignore...
But, we truly do believe
That God must have needed you more...
Perhaps to be an Angel now,
Full of wisdom and love...
Watching over those of us who love you
From the shining stars above.
We miss you more than you can know.
You will never be replaced...
In our hearts and memories forever,
Will be your sweet and innocent sleeping face.
Each time we see your picture
You seem to smile and say,
“Don’t cry, I’m in God’s hands,
We’ll meet again someday!”
“The Best”
God saw you getting tired
And a cure was not to be.
So He put His arms around you
And He whispered “Come to Me”
With tearful eyes we watched you.
We watched you fade away.
Although we loved you dearly,
We could not make you stay.
A golden heart stopped beating,
Hard-working hands at rest.
God broke our hearts to prove to us,
He chose to take the best.
It’s lonesome here without you
We miss you more each day.
Life doesn’t seem the same
Since you have gone away.
When days are sad and lonely
And everything goes wrong,
We seem to hear you whisper
“Cheer Up and Carry On”
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
for your special angel xxx
When God calls little children
To dwell with Him above,
We mortals sometimes question
The wisdom of His love.
For no heartache compares
With the death of one small child
Who does so much to make our world
Seem wonderful and mild.
Perhaps God tires of calling
The aged to His fold.
So He picks a rosebud
Before it can grow old.
God knows how much we need them
And so He takes but few
To make the land of heaven
More beautiful to view.
Believing this is difficult,
Still somehow we must try.
The saddest word that mankind knows
Will always be 'goodbye'.
So when a little child departs,
We who are left behind
Must realize God loves children
Angels are hard to find.
A Child Loaned
"I'll lend you for a little time
A child of Mine," He said,
"For you to love the while he lives,
And mourn for when he's dead.
It may be six or seven years
Or twenty-two or three,
But will you, till I call him back,
Take care of him for Me?
He'll bring his charms to gladden you,
And should his stay be brief,
You'll have his lovely memories
As solace for your grief."
"I cannot promise he will stay,
Since all from earth return.
But there are lessons taught down there
I want this child to learn.
I've looked this wide world over,
In my search for teachers true.
And from the throngs that crowd life's lanes,
I have selected you.
Now will you give him all your love,
Not think the labor vain,
Nor hate Me when I come to call
And take him back again?"
I fancied that I heard them say,
"Dear Lord, Thy will be done,
For all the joy Thy child shall bring,
The risk of grief we'll run.
We'll shelter him with tenderness,
We'll love him while we may,
And for the happiness we've known,
Forever grateful stay.
But should the angels call for him,
Much sooner than we planned,
We'll brave the bitter grief that comes,
And try to understand."
Have A Good Weekend Everyone
This Tribute Is For Friday Got Busy Day Tomorrow
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥
When tomorrow starts without me
And I'm not there to see;
If the sun should rise and find your eyes
All filled with tears for me;
I wish so much you wouldn't cry
The way you did today
While thinking of the many things
We didn't get to say.
I know how much you love me,
As much as I love you.
And each time that you think of me
I know you'll miss me too.
But when tomorrow starts without me
Please try to understand,
That an angel came and called my name
And took me by the hand.
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥
I looked towards the clouds today
And for a moment saw your face.
I wondered just where you have gone
With hope it's a better place.
Did you show yourself to me today,
To tell me you're all right?
Or was it just a daydream
Playing tricks upon my sight?
We will always feel the void inside
Because you are not here.
But each new thought you send our way
Lets us know you're near.
So until our journey nears its end
And we hear the angels sing,
We'll face each new day as it comes
And live off the love you bring.
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥
Life is but a stopping place,
A pause in what's to be,
A resting place along the road,
To sweet eternity.
We all have different journeys,
Different paths along the way,
We are all meant to learn some things,
But never meant to stay.
Our destination is a place,
Far greater than we know,
For some the journey's quicker,
For some the journey's slow.
But when the journey finally ends,
We'll claim a great reward,
And find an everlasting peace,
Together with the Lord.
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
.* * . (\ *** /) * . *.*
.* . * ( \(_)/ ) * * .
.* . * (_ /|\ _) . *. *.*
.* . * . /___\ * . . * .
*. * . * . * . . * *.*.*
Sending you a great big hug ,
with lots of love
x x x x x x x x
Have A Good Weekend Everyone
God saw you getting tired
And a cure was not to be.
So he put his arms around you,
And whispered "Come to Me".
With tearful eyes we watched you,
We watched you fade away.
Although we loved you dearly,
We could not make you stay.
A golden heart stopped beating,
Ward working hands now rest.
God broke our hearts to prove to us
He only takes the BEST
If we could have a lifetime wish
And one dream that could come true
We would pray to God with all our
Hearts just to see and speak to you
A thousand words won’t bring you back
We know because we’ve tried
And neither will a million tears
We know because we’ve cried
You’ve left behind our broken hearts
And precious memories too
But we’ve never wanted memories
We only wanted you.
Little did we know that morning
God was going to call your name.
In life we loved you dearly,
In death we do the same.
It broke our hearts to lose you,
But you did not go alone.
For part of us went with you,
The day God called you home.
You left us peaceful memories,
Your love is still our guide.
And though we cannot see you,
You are always by our side.
Our family chain is broken
And nothing seems the same.
But as God calls us one by one,
The chain will link again.
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
CHER (PAULINE N ROBERT MCGREGORS DAUGHTER)
xx for you my friend xx
There are friends we set apart,
That are different from the rest.
Each and every day that comes,
They give their very best.
Always cheer you when you're sad,
Do their best to make you smile.
They know when you are lonely,
With you they'll stay a while.
You see, these friends are different
Because we've never met.
The only time we spend with them,
Is when we're on the net.
They are what a friend should be.
One who's loyal and true blue.
And this my dear sweet friend,
Happens to be YOU~♥ღ♥
thinking of you love from cher xx
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