| Location | Leeds,halton Moor |
| Age | 2 years |
| Cause of Death | Rare Heart Condition |
| Date of Birth | 2/2005 |
| Date of Death | 12/2007 |
| Visitors | 4,885 since 06/04/2008 |
| Creator |
Pauly was born on 6th Febuary 2005 at 6:39am weighing 3lb 3oz.
Pauly fell asleep on 27th December 2007,at 10:30am amongst his loving family.
When I think of Pauly and who he was, I only think of joy. Cheekyness,boisterous, naughty, loveable
and a fighter. A little boy with a big miracle and although it pains me to say I think T.S. was part
of that miracle. He had a way of making even the most miserable of times happy and bearable. The way
he never forgot anyone, even the woman who stacks the shelfs at Asda. The way he nipped and kicked
his big and little sister, and the way he asked if I was alright and where his sisters were, when
he'd just woke up in intensive care.Most of all Pauly had a wicked laugh and I've never heard a room
fill with such joy since we lost our boy.When I think of Pauly only reaching 2yrs 10mths, I do feel
sad but I do try to remember that it was better than a day.
ITS BETTER TO HAVE LOVED AND LOST THAN TO HAVE NEVER LOVED AT ALL!
Thank-you Pauly for fighting so long.
pauls story follows this in tributes Title; The Timothy in Pauly.
IF ANY ONE WOULD LIKE TO LEAVE A CANDEL OR PIC PLEASE FEEL FREE
WE WOULD BE SO GREATFULL.
THANK-YOU SO MUCH TO ALL WHO LIGHT CANDELS FOR PAULY THEY MEAN THE WORLD TO US.XXX
This is your story darling in mummys words.(well a much shorter version anyway).
When I was 27 weeks pregnant with you the doctors discovered you had a poorly heart. 2;1 av heart
block. So your heart was beating too slow.
The docs said when you was born you would need to have a pacemaker, that would help your heart
function better.
When you was born at just 30 weeks gestation weighing 3lb 3oz, the real fight began.
Due to you been early you was very poorly and you needed special equipment to keep you alive.
A few hours after you was born it became obvious that there was other stuff wrong with you.
You had syndactly (joined) fingers and toes, and a serious heart condition called long QT syndrome.
This meant you was at continuess risk of cardiac arrest.
The 2 symptoms of LQTs and syndactly got the docs thinking you cud have something else.
So your blood, mine and your dads was sent to America and you was very sadly diagnosed with. TIMOTHY
SYNDROME.
A rare and deadly syndrome that had only affected 18 children worldwide.
Sadly the life expectency for T.S. kids is very poor. Most of them have sadly died in there first
year of life.
Timothy syndrome means a whole wide range of things that you cud suffer.
Back then the docs weren't hopeful, not only was you fighting prematurely but you also had a life
threatning disorder.
But your Pauly and as we cum to realise you like to prove everyone wrong, and so we thought, along
with half the estate praying for you.Even people we didnt know.
Slowly you became stronger and got bigger.
The docs said that because of the massive risk of cardiac arrest that you should go home with a
de-fib(a shocking machine) that would hopefully restart you heart.
This was tough me and your daddy had to train in life support advanced,the truth is most docs dont
even need de-fib training.
But we loved you and wanted you home.
When you finally did cum home 4 and a half mths later,you had a de-fib,E.C.G. machine,oxygen and a
feeding tube.
Hard work you, it was like ward 69 at our house, with doctor mummy and daddy.
Over the nxt two years we got you strong you had your hand op that went well.
Everyday we just prayed you would live another.
You was in and out of hospital alot with you chest and other stuff.
You became a little boy, and I think we all took for granted that you were strong.
When you reached 2yrs it was like Timothy had woke up.
The doctors did a recording of you heart and found that for 6 seconds your heart was in a life
threatening rhythm.
It was decided that on 15th june, you needed to be fitted with a pacemaker so they cud increase your
medicine.
During that op you heart became sensitive and you needed shocking more than 10 times.
But again you fought back.
The nxt day you was carrying on saying 'playroom now', 'ECG off now'!
Then the nxt day you started having fits, linked with T.S.
you had a couple then came the hypos(hypoglicimea).
They were really scary as you dropped you sugar levals fast and dangrously low.
Yet again you bounced back, and after 7 weeks we took you home again.
You loved the ward and the staff and I always said you wuld be back soon and you always were.
Hannah house were you went for respite taught us alot. Mostly that you wouldnt break at the
slightest knock.
Thats where you were when it all began on x-mas eve.
Your nurse rung us to say you had needed your de-fib and it had shocked you.
Panic thats all i can remember.
When you arrived at hospital you were fitting and it was so scary.
They finally sedated you and put you on the breathing machine.
They took you to intensive care.
You was stable overnite and on x-mas day you woke up.
The first thing you asked me was where Decie and Lana was(your big and little sisters.)Then because
I was crying with happiness that you was awake you asked if I was alright.
Which made me cry more, you had just been threw all that and you was still asking about other
people.
The nxt day (boxing day) me and Daddy brought you sum of your small presents. and you was took up to
the ward.Uncle Lee brought your Leeds kit, which you loved.
Then uncle Darren and uncle Wayne came, with auntie Della and antie Kelly,they played with you and
feed you beans and sausages.
You loved your pressies mostly the simpsons ones.
We watched sum episodes with you and you fell asleep.
Daddy stayed with you like he always did.Yours and his time at bed.
The nxt morning we rung up to ward to see how you were.You was sleeping so we nipped home to collect
the rest of your presents.
By the time i got home the phone was ringing.
They asked us to cum back as you had got really poorly.
Thats when you left us.27th december, the first non xmas day.
The docs said that your heart had gone into cardiac arrest and had starved you of oxygen.
So we let them stop trying, and I must admit thats the hardest thing we ever had to do for you.
The rest is a blur.
Carrying on without you is only just bearable, I have to for your sisters and daddy.
Yet I do know theres so much to be greatful for.
The fact that you lived as long. Had you of gone when you were neo-natal we wuld not of shared your
first word,steps and laugh.
The fact you got to teach lana well shes a little git.
The holiday to Cleethorpes, where you slept in a big boys bed for the first time, and touched the
sand.
The thing I wished more than anything I've ever wished for,was to hear you one last time,saying
mummy.
And you did, you woke up for a last christmas, you opened sum presents and you told me and daddy
'love you' one last time.
I'm so thankful of you Pauly, you have brightened my life and I'm so proud to say I'm your MUM.
You will never be forgotten and I will continue to tell your courageous story.
THANK-YOU DARLING.!
Miss you millions love you
more.xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx!
happy birthday.xx
happy 4th birthday pauly,have a lovely party.love to you and all your family.xxxxxxxxxxx
This Tribute Is For This Weekend
Candles will be lit as usual on Sunday for Monday
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An angel in the book of life
Wrote down our baby’s birth
She whispered as she closed the book
"Too beautiful for earth."
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You were a gift sent straight from Heaven.
Given to us from God above.
We didn't know how much you would teach us
About the meaning of true love...
For true love sometimes means letting go
Of someone precious and dear.
That is what we were forced to do...
Although we wanted to keep you here!!!
However, this is quite a selfish wish.
One we know we should ignore...
But, sweet loved one, we truly do believe
That God must have needed you more...
Perhaps to be an Angel now,
Full of wisdom and love...
Watching over those of us who love you
From the shining stars above.
We miss you more than you can know.
You will never be replaced...
In our hearts and memories forever,
Will be your sweet and innocent sleeping face.
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If Heaven Had A Phone
I cannot dial your number,
I can't get through to you,
I called the operator,
She did all that she could do.
There is no code for heaven,
I cannot place the call,
No numbers left to call,
I reckon I've tried them all.
If heaven had a phone,
I'd ring you every day,
If heaven had a phone,
There's things I want to say.
To tell you that I love you,
And miss you every day,
How much I prayed to god,
That he could let you stay.
If heaven had a phone,
I'd ring you every day,
If heaven had a phone,
I'd hear your voice, know you're okay,
I just want to speak to heaven,
Please do you have a direct line,
Operator says no number,
But your loved one is doing fine.
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God looked around his garden
And found an empty place
He then looked down upon this earth
And saw your tired face
He put his arms around you
And lifted you to rest
God’s garden must be beautiful
He always takes the best
He knew that you were suffering
He knew you were in pain
He knew that you would never
Get well on earth again
He saw that the road was getting rough
And the hills are hard to climb
So he closed your weary eyelids
And whispered, “Peace be thine”
It broke our hearts to lose you
But you didn’t go alone
For part of us went with you
The day God called you home
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Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
For Friday
This Tribute Is For This Weekend
Candles Will Be Lit On Sunday Night As Usual
Everyone Have A Good Weekend
To My Dearest Family, Some Things I'd Like To Say.
But first of all, to let you know,
That I arrived okay.
I'm writing this from heaven.
Here I dwell with God above.
Here, there's no more tears of sadness;
Here is just eternal love.
Please do not be unhappy
Just because I'm out of sight.
Remember that I am with you every
Morning, Noon and Night.
That day I had to leave you
When my life on earth was through.
God picked me up and hugged me
And He said, "I welcome you.
It's good to have you back again,
You were missed while you were gone.
As for your dearest family,
They'll be here later on.
There's so much that we have to do,
To help our mortal man."
God gave me a list of things,
That he wished for me to do.
And foremost on the list,
Was to watch and care for you.
And when you lie in bed at night
The day's chores put to flight.
God and I are closest to you....
In the middle of the night.
When you think of my life on earth,
And all those loving years.
Because you are only human,
They are bound to bring you tears.
But do not be afraid to cry:
It does relieve the pain.
Remember there would be no flowers,
Unless there was some rain.
I wish that I could tell you
All that God has planned.
If I were to tell you,
You wouldn't understand.
But one thing is for certain,
Though my life on earth is o'er.
I'm closer to you now,
Than I ever was before.
There are many rocky roads ahead of you
And many hills to climb;
But together we can do it
By taking one day at a time.
It was always my philosophy
And I'd like it for you too;
That as you give unto the world,
The world will give to you.
If you can help somebody
Who's in sorrow and pain;
Then you can say to God at night......
"My day was not in vain."
And now I am contented....
My life was worthwhile.
Knowing as I passed along the way
I made somebody smile.
So if you meet somebody
Who is sad and feeling low;
Just lend a hand to pick him up,
As on your way you go.
When you're walking down the street
And you've got Me on your mind;
I'm walking in your footsteps
Only half a step behind.
And when it's time for you to go....
From that body to be free.
Remember you're not going.....
You're coming here to Me.
X X X X X X X X X X X X X X X X X X X X
The moment that you died,
My heart split in two,
The one side filled with memories,
The other died with you.
I often lay awake at night,
When the world is fast asleep,
And take a walk down memory lane,
With tears upon my cheeks.
Remembering you is easy,
I do it every day,
But missing you is a heartache,
That never goes away.
I hold you tightly within my heart,
And there you will remain,
Life has gone on without you,
But it never will be the same.
For those who still have their LOVED ONES,
Treat them with tender care,
You will never know the emptiness,
As when you turn and they’re not there.
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
----HAPPY NEW YEAR
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When tomorrow starts without me
And I'm not there to see;
If the sun should rise and find your eyes
All filled with tears for me;
I wish so much you wouldn't cry
The way you did today
While thinking of the many things
We didn't get to say.
I know how much you love me,
As much as I love you.
And each time that you think of me
I know you'll miss me too.
But when tomorrow starts without me
Please try to understand,
That an angel came and called my name
And took me by the hand.
If we could bring you back again,
For one more hour or day,
We’d express all our unspoken love;
We’d have countless things to say.
If we could bring you back again,
We’d say we treasured you,
And that your presence in our lives
Meant more than we ever knew.
If we could bring you back again,
To tell you what we should,
You’d know how much we miss you now,
And if we could, we would.
Our memories build a special bridge
When loved ones have to part.
To help us feel we're with them still
And soothe a grieving heart.
Our memories span the years we shared,
Preserving ties that bind.
They build a special bridge of love
And bring us peace of mind.
As New Year approaches
It seems harder this time of year
We miss you so much more
The only thing that gets us through
Are the memories of before
So here's a card just for you
To show how much we care
I know your waiting with the angels
One day I'll see you there.
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
I would like to thank everyone for all the candles, tributes gifts and kind words they have left on Christopher’s website I appreciate every single one.
I would also like to wish you all A Happy New Year & my best wishes for 2009.
Angela X
New Years Day
thinking of you all.xx
sweetdreams pauly,sending love to you and your family.xxx thinking of you lisa i know saturday will be hard for you.xxxxxx
Recipe for Christmas All Year Long
♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫
Take a heap of child-like wonder
That opens up our eyes
To the unexpected gifts in life—
Each day a sweet surprise.
Mix in fond appreciation
For the people whom we know;
Like festive Christmas candles,
Each one has a special glow.
Add some giggles and some laughter,
A dash of Christmas food,
(Amazing how a piece of pie
Improves our attitude!)
Stir it all with human kindness;
Wrap it up in love and peace,
Decorate with optimism, and
Our joy will never cease.
If we use this healthy recipe,
We know we will remember
To be in the Christmas spirit,
Even when it's not December.
♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫
As Christmas time approaches
We miss you more and more
Memories of past Yule times
We always will adore
We still hang the decorations
Put the lights upon the tree
We hang the cards upon the wall
This one's for you, you see
Even though you are not here
You're always in our hearts
So we remember you this Christmas
While we're temporarily apart.
♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫
I've set your place at the table
Your presents wrapped under the tree
Christmas carols playing
But you're not here with me
It seems harder this time of year
I miss you so much more
The only thing that gets me through
Are the memories of before
So here's a card just for you
To show how much I care
I know your waiting with the angels
One day I'll see you there.
♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
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-******o*****♥**o***
****o***♥**o***o***♥*
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Dear All,
Everyone that reads this message has lost someone very dear to them.
My Son Christopher was in a car accident on his 27th Birthday, and sadly died 2 days later.
He was a very Family orientated young man, with a heart of gold and we all Love & Miss him so much.
My Husband & I have lost our only Son. Our Daughter has lost her Brother; And Our Grandson’s have lost their Uncle.
The Second Christopher Died A Bright Light Went Out In My Heart, And Has Left Me With A Warm Glow Of Memories & Love That I Treasure And Am Very Proud To Own.
I would like to take this opportunity to thank everyone for all the tributes, candles, photographs, gifts and kind words they have left on Christopher’s website they mean so much to me & To Wish You All
A Merry Christmas, A Happy New Year, And My Best Wishes For 2009.
My candles will be a bit hit and miss I’m afraid for the next week or so for obvious reasons. Take Care
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
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This Tribute Is For This Weekend A Little Longer Than Usual. Sorry It's So Early I've Got A Busy Weekend Ahead
________________________________________________
I will light my candles as usual on Sunday
Our memories build a special bridge
When loved ones have to part.
To help us feel we're with them still
And soothe a grieving heart.
Our memories span the years we shared,
Preserving ties that bind.
They build a special bridge of love
And bring us peace of mind.
When tomorrow starts without me
And I'm not there to see;
If the sun should rise and find your eyes
All filled with tears for me;
I wish so much you wouldn't cry
The way you did today
While thinking of the many things
We didn't get to say.
I know how much you love me,
As much as I love you.
And each time that you think of me
I know you'll miss me too.
But when tomorrow starts without me
Please try to understand,
That an angel came and called my name
And took me by the hand.
If tears could build a stairway,
And memories were a lane,
We would walk right up to heaven
And bring you back again.
Our hearts still ache in sadness
And secret tears still flow.
What it meant to lose you
No one can ever know.
But now we know you want us
To mourn for you no more.
To remember all the happy times,
Life still has much in store.
Since you'll never be forgotten,
We pledge to you today:
A hallowed place within our hearts
Is where you'll always stay.
A million times we've needed you,
A million times we've cried.
If love could have saved you,
You never would have died.
In life we loved you dearly,
In death we love you still.
In our hearts you hold a place
No one will ever fill.
It broke our hearts to lose you
But you didn't go alone.
Part of us went with you
The day God took you home.
Thoughts Today, Memories Forever
Angela (Christopher-John Rowe) Mum
HAVE A GOOD WEEKEND EVERYONE
THIS TRIBUTE IS FOR FRIDAY (BUSY DAY FOR ME)
Our Lives changed, the very moment you passed away.
We couldn't stop it; there was nothing we could say.
You've touched our lives so deeply to a point you will never know,
We try to think about you when we are feeling down and low.
Sometimes when our day gets hard we will think about your beautiful smile
And if we listen hard enough we will hear your voice after a while.
It's you who give us a reason to go on with our day,
And now if we want to see you we'll bow our heads and pray.
We catch ourselves looking for you still, in the halls and at the front door,
But when we call your name there is no reply any more!
We never thought a day would come where we would be apart,
God has you in his keepings, we have you in our hearts.
Life will go on, but never will be the same,
Your beautiful smile is gone, but it will always remain.
You're our angel from up above.
You'll always be missed, but most importantly... loved.
Just one more minute, God, is all we ask- why can't you give them back;
It seems like such a simple task. We guess people are right when they say God only takes the best,
We know enough now that you're peacefully at rest.
X X X X X X X X X X X X X X X X X X X X X X X X X X X
You can shed tears that they are gone,
Or you can smile because they lived,
You can close your eyes and pray that they will come back,
Or you can open your eyes and see all that they have left.
Your heart can be empty because you can't see them
Or you can be full of the love that you shared,
You can turn your back on tomorrow and live yesterday,
Or you can be happy for tomorrow because of yesterday.
You can remember them and only that they are gone
Or you can cherish the memory and let it live on,
You can cry and close your mind be empty and turn your back,
Or you can do what they would want: smile, open your eyes, love and go on.
X X X X X X X X X X X X X X X X X X X X X X X X X X X
I'm writing this from heaven, where I dwell with God above.
Where there's no more tears or sadness, there's just eternal love.
Please do not be unhappy because I am out of sight
Remember that I am with you every morning, noon and night.
And I will stay beside you, every day, week and year
And when you're sad I'll still be there to wipe away your tears.
When you think of my life on earth and all those living years
Because your only human their bound to bring you tears.
But do not be afraid to cry it does relieve the pain
Remember there wouldn't be flowers unless we first had rain.
I wish I could tell you of all that God has planned
But even if I were able to, you wouldn't understand.
When your going down the street and you've got me on your mind
I'm walking in your footsteps and only half a step behind.
And if you feel a gentle breeze or wind upon your face
Remember it's only me with a loving and soft embrace.
X X X X X X X X X X X X X X X X X X X X X X X X X X X
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)
Thursday
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