| Location | Leeds,halton Moor |
| Age | 2 years |
| Cause of Death | Rare Heart Condition |
| Date of Birth | 2/2005 |
| Date of Death | 12/2007 |
| Visitors | 6,706 since 06/04/2008 |
| Creator |
Pauly was born on 6th Febuary 2005 at 6:39am weighing 3lb 3oz.
Pauly fell asleep on 27th December 2007,at 10:30am amongst his loving family.
When I think of Pauly and who he was, I only think of joy. Cheekyness,boisterous, naughty, loveable and a fighter. A little boy with a big miracle and although it pains me to say I think T.S. was part of that miracle. He had a way of making even the most miserable of times happy and bearable. The way he never forgot anyone, even the woman who stacks the shelfs at Asda. The way he nipped and kicked his big and little sister, and the way he asked if I was alright and where his sisters were, when he'd just woke up in intensive care.Most of all Pauly had a wicked laugh and I've never heard a room fill with such joy since we lost our boy.When I think of Pauly only reaching 2yrs 10mths, I do feel sad but I do try to remember that it was better than a day.
ITS BETTER TO HAVE LOVED AND LOST THAN TO HAVE NEVER LOVED AT ALL!
Thank-you Pauly for fighting so long.
pauls story follows this in tributes Title; The Timothy in Pauly.
IF ANY ONE WOULD LIKE TO LEAVE A CANDEL OR PIC PLEASE FEEL FREE
WE WOULD BE SO GREATFULL.
THANK-YOU SO MUCH TO ALL WHO LIGHT CANDELS FOR PAULY THEY MEAN THE WORLD TO US.XXX
This is your story darling in mummys words.(well a much shorter version anyway).
When I was 27 weeks pregnant with you the doctors discovered you had a poorly heart. 2;1 av heart block. So your heart was beating too slow.
The docs said when you was born you would need to have a pacemaker, that would help your heart function better.
When you was born at just 30 weeks gestation weighing 3lb 3oz, the real fight began.
Due to you been early you was very poorly and you needed special equipment to keep you alive.
A few hours after you was born it became obvious that there was other stuff wrong with you.
You had syndactly (joined) fingers and toes, and a serious heart condition called long QT syndrome.
This meant you was at continuess risk of cardiac arrest.
The 2 symptoms of LQTs and syndactly got the docs thinking you cud have something else.
So your blood, mine and your dads was sent to America and you was very sadly diagnosed with. TIMOTHY SYNDROME.
A rare and deadly syndrome that had only affected 18 children worldwide.
Sadly the life expectency for T.S. kids is very poor. Most of them have sadly died in there first year of life.
Timothy syndrome means a whole wide range of things that you cud suffer.
Back then the docs weren't hopeful, not only was you fighting prematurely but you also had a life threatning disorder.
But your Pauly and as we cum to realise you like to prove everyone wrong, and so we thought, along with half the estate praying for you.Even people we didnt know.
Slowly you became stronger and got bigger.
The docs said that because of the massive risk of cardiac arrest that you should go home with a de-fib(a shocking machine) that would hopefully restart you heart.
This was tough me and your daddy had to train in life support advanced,the truth is most docs dont even need de-fib training.
But we loved you and wanted you home.
When you finally did cum home 4 and a half mths later,you had a de-fib,E.C.G. machine,oxygen and a feeding tube.
Hard work you, it was like ward 69 at our house, with doctor mummy and daddy.
Over the nxt two years we got you strong you had your hand op that went well.
Everyday we just prayed you would live another.
You was in and out of hospital alot with you chest and other stuff.
You became a little boy, and I think we all took for granted that you were strong.
When you reached 2yrs it was like Timothy had woke up.
The doctors did a recording of you heart and found that for 6 seconds your heart was in a life threatening rhythm.
It was decided that on 15th june, you needed to be fitted with a pacemaker so they cud increase your medicine.
During that op you heart became sensitive and you needed shocking more than 10 times.
But again you fought back.
The nxt day you was carrying on saying 'playroom now', 'ECG off now'!
Then the nxt day you started having fits, linked with T.S.
you had a couple then came the hypos(hypoglicimea).
They were really scary as you dropped you sugar levals fast and dangrously low.
Yet again you bounced back, and after 7 weeks we took you home again.
You loved the ward and the staff and I always said you wuld be back soon and you always were.
Hannah house were you went for respite taught us alot. Mostly that you wouldnt break at the slightest knock.
Thats where you were when it all began on x-mas eve.
Your nurse rung us to say you had needed your de-fib and it had shocked you.
Panic thats all i can remember.
When you arrived at hospital you were fitting and it was so scary.
They finally sedated you and put you on the breathing machine.
They took you to intensive care.
You was stable overnite and on x-mas day you woke up.
The first thing you asked me was where Decie and Lana was(your big and little sisters.)Then because I was crying with happiness that you was awake you asked if I was alright.
Which made me cry more, you had just been threw all that and you was still asking about other people.
The nxt day (boxing day) me and Daddy brought you sum of your small presents. and you was took up to the ward.Uncle Lee brought your Leeds kit, which you loved.
Then uncle Darren and uncle Wayne came, with auntie Della and antie Kelly,they played with you and feed you beans and sausages.
You loved your pressies mostly the simpsons ones.
We watched sum episodes with you and you fell asleep.
Daddy stayed with you like he always did.Yours and his time at bed.
The nxt morning we rung up to ward to see how you were.You was sleeping so we nipped home to collect the rest of your presents.
By the time i got home the phone was ringing.
They asked us to cum back as you had got really poorly.
Thats when you left us.27th december, the first non xmas day.
The docs said that your heart had gone into cardiac arrest and had starved you of oxygen.
So we let them stop trying, and I must admit thats the hardest thing we ever had to do for you.
The rest is a blur.
Carrying on without you is only just bearable, I have to for your sisters and daddy.
Yet I do know theres so much to be greatful for.
The fact that you lived as long. Had you of gone when you were neo-natal we wuld not of shared your first word,steps and laugh.
The fact you got to teach lana well shes a little git.
The holiday to Cleethorpes, where you slept in a big boys bed for the first time, and touched the sand.
The thing I wished more than anything I've ever wished for,was to hear you one last time,saying mummy.
And you did, you woke up for a last christmas, you opened sum presents and you told me and daddy 'love you' one last time.
I'm so thankful of you Pauly, you have brightened my life and I'm so proud to say I'm your MUM.
You will never be forgotten and I will continue to tell your courageous story.
THANK-YOU DARLING.!
Miss you millions love you more.xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx!
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☆*☆*☆*☆*☆*☆*☆*☆*☆*☆*☆
merry christmas xx
♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥
Tributes For Week Commencing 17th January
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_*♥*__ *♥*_*♥*__*♥* Always
*♥*_____*♥* _____ *♥*
*♥*_____________*♥* In
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___*♥*_______*♥* My
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_______*♥*♥*Heart
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FOR MONDAY
Your gentle face and patient smile
With sadness we recall
You had a kindly word for each
And died beloved by all.
FOR TUESDAY
In our hearts your memory lingers,
Sweetly tender, fond and true,
There is not a day,
That we do not think of you.
FOR WEDNESDAY
Your life was a blessing
Your memory a treasure...
You are loved beyond words
And missed beyond measure...
FOR THURSDAY
You are not forgotten loved one
Nor will you ever be.
As long as life and memory last
We will remember thee.
FOR FRIDAY
After Glow
I'd like the memory of me
To be a happy one.
I'd like to leave an afterglow
Of smiles when life is done.
I'd like to leave an echo
Whispering softly down the ways,
Of happy times and laughing times
And bright and sunny days
I'd like the tears
Of those who grieve,
To dry before the sun
Of happy memories that I leave
When life is done.
FOR SATURDAY
I'm Free
Don't grieve for me, for now I'm free
I'm following the path God laid for me.
I took His hand when I heard Him call
I turned my back and left it all.
I could not stay another day
To laugh, to love, to work or play.
Tasks left undone must stay that way,
I found that peace at the close of day.
If my parting has left a void
Then fill it with remembered joy.
A friendship started, a laugh, a kiss,
Ah yes, these things I too will miss.
Be not burdened with times of sorrow
I wish you the sunshine to tomorrow.
My life's been full, I savoured much,
Good friends, good times, a loved one's touch
Perhaps my time seemed all too brief
Don't lengthen it now with undue grief.
Lift up your heart and share with me
God wanted me now; He set me free.
FOR SUNDAY
When Tomorrow Starts Without Me
When tomorrow starts without me
And I'm not here to see...
If the sun should rise and find your
Eyes filled with tears for me,
I wish so much you wouldn't cry
The way you did today...
While thinking of the many things
We didn't get to say.
I know how much you love me,
As much as I love you...
And each time you think of me,
I know you'll miss me too.
But when tomorrow starts without me,
Please try to understand...
That Jesus came and called my name,
And took me by the hand.
He said my place was ready
In Heaven far above...
And that I'd have to leave behind
All those I dearly love.
So when tomorrow starts without me,
Don't think we're far apart...
For every time you think of me,
I'm right here in your heart.
♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥
……………Thoughts Today, Memories Forever
………….Angela Christopher’s Very Proud Mum
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Tributes For Week Commencing 4th October
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FOR MONDAY
God saw you getting tired,
When a cure was not to be.
So He wrapped his arms around you
And whispered "Come to Me"
FOR TUESDAY
A daily thought, a silent tear,
A constant wish that you were here.
Never more than a thought away
Loved and remembered every day.
FOR WEDNESDAY
Although you've left us,
And now walk above
We're never alone
We're wrapped in your love
FOR THURSDAY
Just a prayer from those who loved you,
Just a memory fond and true,
In our hearts you'll live forever,
Because we thought the world of you.
FOR FRIDAY
There is no night without a dawning,
No Winter without a Spring
And beyond death’s dark horizon
Our hearts once more will sing-
For those who leave us for a while
Have only Gone Away
Out of a restless, careworn world
Into a “Brighter day”
FOR SATURDAY
If my parting has left a void,
Then fill it with remembered joy,
A friendship shared, a laugh, a kiss;
Ah yes, these things, I too will miss.
Be not burdened with times of sorrow;
I wish you the sunshine of tomorrow,
My life's been full, I savoured much;
Good friends, good times, a loved one's touch.
Perhaps my time seemed alltoo brief;
Don't lengthen it now with undue grief,
Lift up your heart and share with me;
God wanted me now, He set me free.
So come close to me my family,
Let me whisper in your ear,
I have not really left you
And if you try, you'll feel me near
FOR SUNDAY
To have and to hold, and then to part,
Is the greatest sorrow of a broken heart.
Too young to die, too precious to lose,
We had no choice, we couldn't choose.
In thoughts we see you just the same,
With love and pride we speak your name,
You are never more than a thought away;
We love and remember you every day
.
Every flower and leaf may wither,
Each evening sun may set
The hearts that loved and lost
Are the ones that will never forget.
I try so hard to hide,
Some people say as time goes by
The heartache will subside.
But the feelings in our hearts today
Are the same as the day you died.
It broke our hearts to lose you,
Your parting caused such pain
But the greatest day has yet to come,
When we will meet again.
♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥
…………………Thoughts Today, Memories Forever
……………….Angela Christopher’s Very Proud Mum
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hello
Hello,
How are you? i hope all is well with you, i hope you may not know me, and i don't know who you are, My Name is Miss cyentha khalifa i am just broswing now i just saw your profle (www.gonetoosoon.org) it seams like some thing touches me all over my body, i started having some feelings in me which i have never experience in me before, so i became interested in you, l will also like to know you the more,and l want you to send an email to my email address(cyenthakhalifa22@yahoo.com) so l can give you my picture for you to know whom l am. I believe we can move from here!I am waiting for your mail to my email address above. (Remeber the distance or colour does not matter but love matters alot in life)
miss cyentha.khalifa (cyenthakhalifa22@yahoo.com)
♥
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"We do not want you to be unaware, brothers, about those who have fallen asleep, so that you may not grieve like the rest, who have no hope. For if we believe that Jesus died and rose, so too will God, through Jesus, bring with him those who have fallen asleep. Indeed, we tell you this, on The Word of the Lord, that we who are alive, who are left until the coming of the Lord, will surely not precede those who have fallen asleep. For the Lord himself, with a word of command, with the voice of an archangel and with the trumpet of God, will come down from heaven, and the dead in Christ will rise first. Then we who are alive, who are left, will be caught up together with them in the clouds to meet the Lord in the air. Thus we shall always be with the Lord. Therefore, console one another with these words."
1 Thessalonians 4:13-18
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LOVE ALWAYS, VIKKILEAH
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Dear Paul
Having just read your story my angel couldnt help but shed a tear or two as I write this,what a brave lil boy and an inspiration to your parents and sisters whose lives you came and touched and who now will forever be changed as mine is since I lost my own lil angel at almost two 14 years ago. Mummy has told your story well every detail is important as its a memory of you and your short visit to earth will never ever be forgotten, you in your own small way have brightened up the lives of those you visited for such a short time on earth and as hard as it is that you have gone...... no one ever really dies while they live on in our hearts... Ive loved reading about you and now a small part of you lives in me, stay near to yopur family Paul and send lots of love to Mummy and Daddy sbravely telling your story and eductaing us about TS ( I had never heard of it) It is the hardest thing of all to lose a child but they wil see you later on eh, for no they will need strength for the journey ahead, you left special memories that no one can take away but always I know that its not enough there was of course always room for more. More spealc hugs more of your smile..... my little girl didnt quite have the grasp of language you did but I have her on tape and every sound she made is precious.... ssending so much love to you Pauly in that next place and as am 14 years on in my journey to your parents whose lives will never ever be quite as shiny as it was while you lived on earth. Fly Fly Little wing XXXXX
The tiny rosebud God picked to bloom in Heaven.
The master gardener from heaven above
Planted a seed in the garden of Love,
And from it there grew a rosebud small
That never had time to open at all.
For God in his perfect and all-wise way
Chose this rose for his heavenly bouquet,
And great was the joy of this tiny rose
To be the one our Father chose
To leave earth’s garden
For one on high
where roses bloom always and never die.
So, while you can’t see your precious rose bloom,
You know the great gardener from the upper room
Is watching and tending this wee rose with care,
Tenderly touching each petal so fair.
So think of your darling with the angels above,
Secure and contented and surrounded with love,
And remember God blessed and enriched your lives too,
For in dying your darling brought heaven closer to you.
Helen Steiner Rice
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