Paul (Pauly) Graham Ackroyd

2005 - 2007
LocationLeeds,halton Moor
Age2 years
Cause of DeathRare Heart Condition
Date of Birth2/2005
Date of Death12/2007
Visitors4,854 since 06/04/2008
Creator

Pauly was born on 6th Febuary 2005 at 6:39am weighing 3lb 3oz.
Pauly fell asleep on 27th December 2007,at 10:30am amongst his loving family.

When I think of Pauly and who he was, I only think of joy. Cheekyness,boisterous, naughty, loveable
and a fighter. A little boy with a big miracle and although it pains me to say I think T.S. was part
of that miracle. He had a way of making even the most miserable of times happy and bearable. The way
he never forgot anyone, even the woman who stacks the shelfs at Asda. The way he nipped and kicked
his big and little sister, and the way he asked if I was alright and where his sisters were, when
he'd just woke up in intensive care.Most of all Pauly had a wicked laugh and I've never heard a room
fill with such joy since we lost our boy.When I think of Pauly only reaching 2yrs 10mths, I do feel
sad but I do try to remember that it was better than a day.

ITS BETTER TO HAVE LOVED AND LOST THAN TO HAVE NEVER LOVED AT ALL!

Thank-you Pauly for fighting so long.
pauls story follows this in tributes Title; The Timothy in Pauly.
IF ANY ONE WOULD LIKE TO LEAVE A CANDEL OR PIC PLEASE FEEL FREE
WE WOULD BE SO GREATFULL.
THANK-YOU SO MUCH TO ALL WHO LIGHT CANDELS FOR PAULY THEY MEAN THE WORLD TO US.XXX
This is your story darling in mummys words.(well a much shorter version anyway).

When I was 27 weeks pregnant with you the doctors discovered you had a poorly heart. 2;1 av heart
block. So your heart was beating too slow.
The docs said when you was born you would need to have a pacemaker, that would help your heart
function better.
When you was born at just 30 weeks gestation weighing 3lb 3oz, the real fight began.
Due to you been early you was very poorly and you needed special equipment to keep you alive.
A few hours after you was born it became obvious that there was other stuff wrong with you.
You had syndactly (joined) fingers and toes, and a serious heart condition called long QT syndrome.
This meant you was at continuess risk of cardiac arrest.
The 2 symptoms of LQTs and syndactly got the docs thinking you cud have something else.
So your blood, mine and your dads was sent to America and you was very sadly diagnosed with. TIMOTHY
SYNDROME.
A rare and deadly syndrome that had only affected 18 children worldwide.
Sadly the life expectency for T.S. kids is very poor. Most of them have sadly died in there first
year of life.
Timothy syndrome means a whole wide range of things that you cud suffer.
Back then the docs weren't hopeful, not only was you fighting prematurely but you also had a life
threatning disorder.
But your Pauly and as we cum to realise you like to prove everyone wrong, and so we thought, along
with half the estate praying for you.Even people we didnt know.
Slowly you became stronger and got bigger.
The docs said that because of the massive risk of cardiac arrest that you should go home with a
de-fib(a shocking machine) that would hopefully restart you heart.
This was tough me and your daddy had to train in life support advanced,the truth is most docs dont
even need de-fib training.
But we loved you and wanted you home.
When you finally did cum home 4 and a half mths later,you had a de-fib,E.C.G. machine,oxygen and a
feeding tube.
Hard work you, it was like ward 69 at our house, with doctor mummy and daddy.
Over the nxt two years we got you strong you had your hand op that went well.
Everyday we just prayed you would live another.
You was in and out of hospital alot with you chest and other stuff.
You became a little boy, and I think we all took for granted that you were strong.
When you reached 2yrs it was like Timothy had woke up.
The doctors did a recording of you heart and found that for 6 seconds your heart was in a life
threatening rhythm.
It was decided that on 15th june, you needed to be fitted with a pacemaker so they cud increase your
medicine.
During that op you heart became sensitive and you needed shocking more than 10 times.
But again you fought back.
The nxt day you was carrying on saying 'playroom now', 'ECG off now'!
Then the nxt day you started having fits, linked with T.S.
you had a couple then came the hypos(hypoglicimea).
They were really scary as you dropped you sugar levals fast and dangrously low.
Yet again you bounced back, and after 7 weeks we took you home again.
You loved the ward and the staff and I always said you wuld be back soon and you always were.
Hannah house were you went for respite taught us alot. Mostly that you wouldnt break at the
slightest knock.
Thats where you were when it all began on x-mas eve.
Your nurse rung us to say you had needed your de-fib and it had shocked you.
Panic thats all i can remember.
When you arrived at hospital you were fitting and it was so scary.
They finally sedated you and put you on the breathing machine.
They took you to intensive care.
You was stable overnite and on x-mas day you woke up.
The first thing you asked me was where Decie and Lana was(your big and little sisters.)Then because
I was crying with happiness that you was awake you asked if I was alright.
Which made me cry more, you had just been threw all that and you was still asking about other
people.
The nxt day (boxing day) me and Daddy brought you sum of your small presents. and you was took up to
the ward.Uncle Lee brought your Leeds kit, which you loved.
Then uncle Darren and uncle Wayne came, with auntie Della and antie Kelly,they played with you and
feed you beans and sausages.
You loved your pressies mostly the simpsons ones.
We watched sum episodes with you and you fell asleep.
Daddy stayed with you like he always did.Yours and his time at bed.
The nxt morning we rung up to ward to see how you were.You was sleeping so we nipped home to collect
the rest of your presents.
By the time i got home the phone was ringing.
They asked us to cum back as you had got really poorly.
Thats when you left us.27th december, the first non xmas day.
The docs said that your heart had gone into cardiac arrest and had starved you of oxygen.
So we let them stop trying, and I must admit thats the hardest thing we ever had to do for you.
The rest is a blur.
Carrying on without you is only just bearable, I have to for your sisters and daddy.
Yet I do know theres so much to be greatful for.
The fact that you lived as long. Had you of gone when you were neo-natal we wuld not of shared your
first word,steps and laugh.
The fact you got to teach lana well shes a little git.
The holiday to Cleethorpes, where you slept in a big boys bed for the first time, and touched the
sand.
The thing I wished more than anything I've ever wished for,was to hear you one last time,saying
mummy.
And you did, you woke up for a last christmas, you opened sum presents and you told me and daddy
'love you' one last time.
I'm so thankful of you Pauly, you have brightened my life and I'm so proud to say I'm your MUM.
You will never be forgotten and I will continue to tell your courageous story.
THANK-YOU DARLING.!
Miss you millions love you
more.xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx!


Recent Gifts

Recent Tributes


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PAUL X

GOD CALLED YOUR NAME SO GENTLY
THAT ONLY YOU COULD HEAR
NO ONE HEARD THE FOOTSTEPS
OF A ANGEL DRAWING NEAR
SOFTLY FROM THE SHADOWS
THERE CAME A GENTLE CALL
YOU CLOSED YOUR EYES AND WENT TO SLEEP
AND QUITLY LEFT US ALL
LOVE YOU AWAYS CHER x

Cheryl Daley 4 weeks ago

♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥

Tributes For This Week Starting 19th October

♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥

FOR MONDAY

Your gentle face and patient smile
With sadness we recall
You had a kindly word for each
And died beloved by all.

FOR TUESDAY

Your life was a blessing
Your memory a treasure...
You are loved beyond words
And missed beyond measure...

FOR WEDNESDAY

We miss you now, our hearts are sore,
As time goes by we miss you more,
Your loving smile, your gentle face,
No one can fill your vacant place.

FOR THURSDAY

Looking back with memories,
Upon the path you trod,
We bless the hours we had with you,
And leave the rest with God.


FOR FRIDAY

ROSES GROW IN HEAVEN

If Roses grow in Heaven,
Lord please pick a bunch for me
Place them in my Loved ones arms
And tell them they're from me

Tell them I love and miss them
And when they turn to smile
Place a kiss upon their cheeks
And hold them for awhile

Because remembering them is easy,
I do it every day
But there's an ache within my heart
Because I am missing them today...



FOR SATURDAY

I AM WITH YOU ALWAYS

As you hold me close in memory,
Even though we are apart,
My spirit will live on,
There within your heart .
I am with you always.

When you lean on trusted friends
And their caring hugs enfold you,
Within their loving arms,
I'll be there to hold you.
I am with you always.

And beyond the far horizon
When we'll finally be together,
Where love will be eternal
And life will last forever.
I am with you always.


FOR SUNDAY

TRUE LOVE

You were a gift sent straight from Heaven.
Given to us from God above.
We didn't know how much you would teach us
About the meaning of true love...

For true love sometimes means letting go
Of someone precious and dear.
That is what we were forced to do...
Although we wanted to keep you here!!!

However, this is quite a selfish wish.
One we know we should ignore...
But, sweet angel, we truly do believe
That God must have needed you more...

Perhaps to be an Angel now,
Full of wisdom and love...
Watching over those of us who love you
From the shining stars above.

We miss you more than you can know.
You will never be replaced...
In our hearts and memories forever,
Will be your sweet and innocent sleeping face.


♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥AXC♥

Thoughts Today, Memories Forever
Angela Christopher’s Very Proud Mum

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Marie-Angela Rowe October 18, 2009

Angel Paul

When God calls little children to dwell with Him above
We mortals sometime question the wisdom of His love.
For no heartache compares with, the death of one small child
Who does so much to make our world, seem wonderful and mild.
Perhaps God tires of calling the aged to his fold.
So He picks a rosebud before it can grow old.
God knows how much we need them, and so He takes but few
To make the land of Heaven more beautiful to view.
Believing this is difficult, still somehow we must try.
The saddest word mankind knows will always be "Goodbye"
So when a little child departs, we who are left behind,
Must realize God loves children
"Angels are hard to find".

Lots of love Noahs Mummy xxxxxxxxxxxxxx

Kerri Reeves October 12, 2009

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.....(....).....Oooo ...
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R.I.P Pauly mate missing you like mad.
Its realy upsetting with out you
You will always be remembered
Lots of love Sophie Monkman XxX

Sophie Monkman May 7, 2009

Happy Easter Paul

SKY BUNNIES

() ()
('.')
(')_(')
The Sky Is Full Of Bunny Clouds
So Soft And Fat And White,
I Wonder If They're Hiding Eggs
For Angels To Find With Delight.

Because Angels Like Easter As Well, You Know,
And There's No Reason Why
There Shouldn't Be An Easter Hunt
In Meadows In The Sky.

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-{*~*~*~*~*~*HAPPY~*~*~*~*~*~}
-{~*~*~*~*~*EASTER*~*~*~*~*~*}
-{*~*~*~*~*~*ANGEL~*~*~*~*~*~}
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Michelle Mum To Toni April 9, 2009

To my mummy and daddy

To Mummy and Daddy
To My Dearest Mummy and Daddy, and my dearest family, some things I’d like to say, But first of all to let you know that I arrived OK. I’m writing this from heaven, where I dwell with God above, where there are no more tears or sadness, there is just eternal love. Please don’t be unhappy just because I’m out of sight, Remember that I’m with you every morning, noon and night. That day I had to leave you mum, God picked me up and hugged me and he said, “I welcome you, It’s good to have you back again, you were missed while you were gone, As for your dearest family they’ll be by later on. I need you here so badly, as part of my big plan there’s so much that we have to do to help our mortal man”. Then God gave me a list of things he wished for me to do, and foremost on that list of mine is to watch and care for you. And I will be beside you every day, week and year, and when you’re sad I’m standing there to wipe away the tear. And when you lie in bed at night, the days’ chores put to flight, God and I are closer to you in the middle of the night, when you think of me and get upset, and because you’re only human they are bound to bring you tears. But do not be afraid to cry, it does relieve the pain, Remember there would be no flowers unless there was some rain. I wish that I could tell you of all that God has planned, but if I were to tell you, you wouldn’t understand. But one thing is for certain, though my life didn’t have a chance, I’m closer to you now than I ever was before. Trust God knows what is best, I’m still not far away from you, and I’m just beyond the crest. There are rocky roads ahead of you and many hills to climb, but together we can do it taking one day at a time. It was always my philosophy, and I’d like it for you too, that as you give unto the world, so the world will give to you. If you can help somebody who’s in sorrow or in pain, then you can say to God at night my day was not in vain. So if you meet somebody who is down and feeling low just lend a hand to pick them up as on your way you go. When you are walking down the street and you’ve got me on your mind, I’m walking in your footsteps only half a step behind. And when you feel that gentle breeze or the wind upon your face, that’s me giving you a great big hug, or just a soft embrace. And when it’s time for you to go from that body to be free, remember you’re not going, you are coming here to me. I will always love you mummy, Will be in touch again soon Love pauly xxxxxx

Bethany Handley March 9, 2009

Tribute For This Weekend


Candles will be lit as usual on Sunday for Monday



I would like to take this opportunity to thank everyone for all the candles, tributes and photographs they have taken the time to leave on Christopher’s Website they are very much appreciated I read every single one.
I Love And Miss Him So Much.

Thanks again Angela X



Love is like a butterfly;
It goes where it pleases
And pleases wherever it goes.


The best and most beautiful
Things in the world cannot
Be seen or even touched.
They must be felt with the heart


The Watcher

You always leaned to watch for us
Anxious if we were late,
In winter by the window,
In summer by the gate.

And though we mocked you tenderly
Who had such foolish care,
The long way home would seem more safe,
Because you waited there.

Your thoughts were all so full of us,
You never could forget,
And so I think that where you are
You must be watching yet.

Waiting ‘til we come home to you
Anxious if we are late
Watching from Heaven’s window
Leaning from Heaven’s gate.


To Those Whom I Love and Those Who Love Me


When I am gone, release me, let me go
I have so many things to see and do
You must not tie yourself to me with tears
Be happy that I have had so many years

I gave you my love, you can only guess
How much you gave me in happiness
I think you for the love each have shown
But now it is time I traveled on alone

So grieve a while for me, if grieve you must
Then let your grief be comforted by trust
It is only for a while that we must part
So bless the memories in your heart

I will not be far away, for life goes on
So if you need me, call and I will come
Though you can not see or touch me,
I will be near and if you listen with your heart,

You will hear all of my love around you
Soft and clear then, when you must come this way alone I will greet you with a smile and a
"Welcome Home"



Friends Are Like Angels,


Who brighten our days.
In all kinds of wonderful,
Magical ways.
Their thoughtfulness comes,

As a gift from above.
And we feel we're surrounded,
By warm, caring love.
Like upside-down rainbows,

Their smiles bring the sun.
And they fill ho-hum moments,
With laughter and fun.
Friends are like angels,

Without any wings.
Blessing our lives,
With the most precious thing



Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
For Friday

Marie-Angela Rowe February 19, 2009

xxxxx

Just letting you know I was here

......oooO.......... ....
.....(....).....Oooo ...
......)../.....(.... )....
.....(_/.......)../. ....
...............(_/.. .....

to leave my love xxxxxxxx

Nicola Mum Of Kyle Coope (Friend) February 8, 2009

Happy birthday

hope you had a lovely birthday yesterday xxx

Romney Tedford February 7, 2009

happy birthday

Happy Birthday beautiful. Thinking of you always and forever lil man rip darling xxxxx

Lee And Nicola Henderson February 6, 2009
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